Head Games
A benign brain tumor diverted me from the path I'd envisioned, but it didn't stop me from finding my voice.
People tell me I look "normal," whatever that means. For a 34-year-old woman who has survived three brain surgeries and one radiation treatment, I guess I appreciate that. My life previous to diagnosis is gone forever. My new life is different. And as someone whose dream was to finish writing that novel, now I find I'm just glad I can read. Who cares if I can't drive? I've learned to listen to the voices of compassion and truth.
In 2001, I was a single woman living in Minneapolis and about to turn 28. I had just been accepted to graduate school and gave notice at my job as a social worker. But on my last day of work my doctor called. I had been suffering from dizzy spells and vomiting for three months. An MRI revealed a mass on my brain, and I was diagnosed with a benign brain tumor. Doctors performed two surgeries on my brain: one to implant a permanent shunt for drainage and another to "debulk" the tumor.
I did not react well to the medications I had to take; the smallest dose of steroids for brain swelling made me like a zombie. One doctor told my mother, "You need to come to grips with it. Your daughter just isn't right." He probably meant the steroids were affecting me more than the average person, but to us his words dimmed my belief in a bright future. But in the midst of medicinal fog I listened to a small, quiet voice inside of me say, "There's hope."
After I was discharged from the hospital, my parents brought me to live with them in their rural community of 100 people in North Dakota. I had lived in the bright lights of the big city for over nine years, but I liked small-town life, and the solitude assisted me in recovering a sense of self. Within a month I no longer needed medication, or physical and occupational therapy, but I continued to meet with a speech therapist. Week after week I flunked his memory tests, and the failures threatened my sense of hope. Then, two and half months into our meetings, I remembered an article on learning styles. I had read it years earlier and tentatively shared it with the therapist: "You've tested me with auditory questions, but I'm a visual learner. How about a different test?" He dug into his files and quizzed me using questions he had never utilized previously. I earned a perfect score and voiced my new confidence. "Thank you. I no longer need your services."
I eventually moved to California and began graduate classes in theology and culture. My grades were good, but after I made yet another odd mistake in class, someone asked me, "Were you like this before your surgery?"
It's true; I'm not the person with the same abilities that I once was. Sometimes it takes me longer to recognize sarcasm, and I miss my quicker wit. My sense of timing and visual perception make it difficult to safely drive, and when I lean down to tie my shoe I sometimes bump my head, not clearly seeing the corner of the table in my way. I tell myself after these experiences, "I'm going to focus on my abilities, not what I can't do." Last year I earned two master's degrees from Fuller Theological Seminary—one in theology and one in intercultural studies.
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Member Comments
Posted By: momoney163 @ 03/18/2008 9:36:41 PM
Comment: Wow. Thanks for the insight. Yeah, life's definately not the same as before diagnosis. It's ashame that it has to happen, but I truly believe were all better people for having gone through something like this. I'm schedualed to have my third operation too.
Say, can I reference this article on my site, www.imsurvivor.com? Infact I invite you all to check it out. It's dedicated to survivors of serious and chronic illness. What an inspiring story.
Posted By: Knnt @ 03/18/2008 12:43:07 AM
Comment: Believe it or not, I wish I could be more like you..... you are so much more positive and so much stronger with your illness than I am with mine.....
Posted By: whome5 @ 03/17/2008 3:00:14 PM
Comment: thank you for the article, I enjoyed it. I too have a benign tumor and relate to many things you described although I've had only one surgery so far.