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Proceeding With Caution: Our family life has changed
MY TURN

A Plea for My Daughter

I don't want to inconvenience others over Lydia's allergies. But to not do so would be unthinkable.

 

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I've spent a lot of time thinking about what I'll say to the other parents on back-to-school night when my daughter enters first grade. That day is still months away, but I know I need to plan my words very carefully. I need to ask the other parents in the class to protect my daughter's life, and I know there is a good chance that some of them won't feel like participating.

In January my daughter was diagnosed with peanut and tree-nut allergies. Unlike most children diagnosed with severe food allergies, she had never exhibited a visible reaction to the food to which she's allergic. Her allergy was caught by chance, by an allergist who was supposed to be examining her for suspected asthma. Follow-up testing not only confirmed the allergies, but indicated that the peanut allergy is severe.

Over the course of a few days, our family's life changed. Lydia didn't object to not being able to eat nuts—she's never cared for them, and now I know why: they probably made her mouth or throat itch. It's the other adjustments, the ones we didn't expect, that are harder. The Chinese buffet restaurant where we like to take the kids for dinner? Off-limits, forevermore. Chinese food is often cooked in peanut oil, and the risk of cross-contamination at a buffet is uncontrollable. Ice-cream parlors, bakeries and doughnut shops are also forbidden. But the hardest thing so far has been watching a 5-year-old practice injecting her own thigh with epinephrine, the lifesaving medication she'll have to take, quickly, if she ever eats a trace of peanut by accident.

Lydia will never be able to go to a birthday party without bringing her own homemade cupcake. Every time she eats in a restaurant, she'll have to bring a card detailing her allergies and pray the chef takes her seriously. I don't want to think about when she's a teenager, too cool to even ask what's in food she's being offered. For now, she can't go over to a friend's house without the friend's mother's being fully versed in Lydia's emergency protocol. It's enough work keeping kids entertained and fed; staving off anaphylactic shock may be more than some moms are willing to sign on for.

But Lydia did all these now forbidden things before she was diagnosed. She ate cookies made on equipment shared with nuts. She went on playdates and ate whatever snack was offered her. She sat across the table from a brother whose hands were sticky with peanut butter. She never had a problem before; what's different now?

What's different is that now we know that there are antibodies lurking in her blood that will overreact if they come in contact with the smallest bit of nut. We're not being insanely cautious now; we were insanely lucky before. Peanut allergies are like mutual funds: past performance is no guarantee of future results. Lydia's last reaction to nuts may have been itchy lips. Her next could kill her.

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  • Posted By: Mom4 @ 02/25/2009 7:00:00 AM

    How astounding people are to make comments filled with judgement and vitriol, when they speak from no personal experience! My 4th child, a boy, was diagnosed with anaphylaxis to peanuts and tree nuts at 7 months. A Skin Prick Test was not even considerded safe.My older 3 kids were fine, peanut butter had been part of their normal diet . OUR lives were turned upside down. The point is: no one chooses to make this health issue the problem of anyone else, but there is no choice! In the case of extreme, fatal allergy - and he has seen more than one specialist - it is not sufficient for the person suffering from the allergy to avoid the product in question. ANY contact is enough to cause an anaphylactic reaction. - The smell of a school mate's peanut butter sandwich, the remainder on a surface or hand, the vapour that escapes when a packet of nuts is opened (hence the panic on a 'plane). The merest trace will cause him to stop breathing, and it will be a very quiet and perhaps unnoticed death.
    So as moms, we ask for some consideration. At 11, he is wise and responsible beyond his years. Sadly, he does depend on the consideration of people around him. In the main, I have found his peer group to be far more tolerant than their parents. All I can say to all the nay- sayers out there who think our caution is much ado about nothing, there but by the grace of God go you - and those you love. Allergies can strike at any time.
    An allergy that is severe cannot be compared to diabetes, debilitating though the latter may be. You can 'manage' diabetes, if you don't get to the extreme allergy sufferer in time, he/she will die.The worst sufferers are not 'lucky' enough to itch, vomit, swell, break out in hives. The simply stop breathing. You cannot over-react to that possibility. Those of us involved and who really understand, pray each day for some medical breakthrough.
    Oh, and by the way, there IS a difference between a fish allergy and a shellfish allergy......

  • Posted By: liskea @ 01/09/2009 1:58:37 PM

    There are some very helpful, supportive comments on here. There are also some very unkind comments too including one of the last ones by LifesProtagonist.

    Look, a severely food allergic child/person can DIE from eating something they shouldn't. Clearly you have never seen someone die or almost die from anaphylactic shock. I have, on both counts.

    By the way, there are plenty of knowledgable doctors out there who DO know what they are talking about. They know this because of their extensive training and experience about the subject and based on much research. Do NOT compare King's potentiallly life threatening situation with her daughter to the risk we all take walking out the door every day. A food allergy is a very real thing. Part of the reason, Ms. King, I am writing this is to give you some support and have this listing above LifesProtagonist's offensive one.

    And to you LifesProtagonist: Lighten up. Use your energy for something more constructive. Educate yourself. Have some compassion. Stop being mean. You are gaining nothing by writing your angry comments. You too may need someone to show you compassion and understanding some day.

  • Posted By: LifesProtagonist @ 12/31/2008 3:02:17 AM

    Fish AND Seafood?

    You're not very smart, are you?

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