Alana Goldstein for Newsweek
Author Kim Lute
MY TURN

The Picture of Health

Conventionally speaking, I'm unhealthy. But perhaps it's time we redefined the word.

 
 
 

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On a recent Monday morning, I underwent a routine liver biopsy. I changed into one of those awful hospital gowns, signed away a slew of legal rights should anything go amiss, withstood an IV-line placement and arranged myself into the prescribed position: lying on my back, my right arm high above my head.

Over the years, I've become inured to hospitals, needles, ambulance rides and promises of doom and gloom. Twenty years ago, when I was 15, I was diagnosed with autoimmune hepatitis. At 22, I underwent a liver transplant. By 24 I had developed ulcerative colitis and two years later I had my large intestine removed. These two early diseases then begat a third: primary sclerosing cholangitis. PSC, a liver disease, prompted a second liver transplant when I was 28.

But I don't feel put upon or see myself as some sort of "other," representing all that can go wrong. In fact, I've come to think of myself as the picture of health. Is this delusional? Perhaps. But I don't believe I'm the sum total of every unfortunate medical crisis I've ever come up against. Yes, there have been diagnoses that have complicated my young life, but where there's been disease there has also been triumph.

When I explained this to the nurse assisting with the biopsy, after he referred to me as very unhealthy, he balked at the idea. I guess I could understand his hesitation. Maybe I'd had brief, healthy intervals, but did I really consider myself healthy? What healthy person knows to ask for a less painful butterfly needle, and instinctively knows that in order "to get a good vein" for a blood draw, it's best to dangle your arms over the side of the chair? Besides, if I were the picture of health, I wouldn't be on a first-name basis with many of the emergency-room valets. Yet, it's precisely because of my experiences and routines that I think I'm healthy.

It's too elemental to define being healthy as merely the absence of illness, frailties and failings, the chance to count yourself among those who have never been on the receiving end of a frightening diagnosis. Maybe a healthy person is someone who's in constant pursuit of it, someone who's lost it and fought hard to regain it, someone who appreciates that being healthy isn't merely an abstract state of being to which some are blessed and others are deprived. Under this premise I'm fit, hard fought and hard won.

I cannot help that doctors will always see me in terms relative to a set of finite radiology or pathology reports, or that neighbors will always refer to me as L.J. and Deborah's daughter, the wan one, or even that most others will see me in terms of where one surgical scar ends and another begins. This is not all that I am. I see a body that heals quickly after trauma, one that mercifully forgets the pain of biopsies, surgeries and colonoscopies, one that remembers its strengths. When I'm in the throes of a spinal tap, or when friends and family are present for the insertion of a second or third urine catheter, this confidence admittedly wanes. But it doesn't stay gone for long.

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  • Posted By: ladybird1358 @ 04/21/2009 11:23:39 AM

    Hi Kim,
    Thank you for this wonderful article. I lost my younger sibling to liver disease in 2006, and subsequently underwent a liver transplant in October 2007. I identify with everything that you are going through. What keeps me going is my faith and my family. I am stronger and better for having traveled this difficult road. Everyday is better than the next. I no longer take life for granted.
    -CKS

  • Posted By: steph2424 @ 02/15/2009 11:03:16 PM

    I want to commend Kim on her strength and attitude I am healthy. I had my first kidney transplant for 17 years ago and can relate to how the doctor's see you that you are their patient and being healthy is not in their vocabulary. The countless test you go through and all those medical history sheets needed to be filled out and when it comes to the line name all surgeries you have had, but wait there is never enough room to write in all of them. I am now awaiting for my next transplant and started hemodialysis again. Soon it comes back to why this is happening to you and at an age where you were thinking how boys were now cute. I was 16 when I had my first transplant ,the donor was my sister. I had spent a year prior to my transplant on hemodialysis. A sophmore in highschool and 3 times a week for 3 hours at a time talk about a cramp into my social life. Kim you are a inspiration to myself how you keep on going you are healthy just wanting to live a normal life. I can relate in so many ways and know exactly what it is like to have the pain of a biopsy. You can email me at spfau24@yahoo.com. I loved your article

  • Posted By: MtnGinder @ 01/18/2009 10:22:46 PM

    Kim, This captures, in a calm way, the resiliency of a person through harsh health processes. You were hit with life-disrupting events; you coped not crumbled, you became better not bitter, you emerged stronger not weaker! You're journey is VIRTUALLY IDENTICAL to mine! Physical limitations frees the spirit, soul and heart. You explored and defined and redefined your environment, the players in it and boundless freedoms most won't ever be free due to non-challenge!! My path of reconstruction spiritually, emotionally, physically and intellectually means more to read about another with emotional awareness and inconvenient daily routines that simply become routine.
    Would welcome you to visit Kim: http://www.carepages.com/carepages/AlAlquist -Al

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