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HEALTH

Out of the Shadows

After meeting for years on anonymous and secret Web sites, pro-anorexia groups are now moving to more public forums like Facebook.

 
 
 

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A Web page labeled "Ana Boot Camp" recently offered its members a seemingly irresistible proposition: a 30-day regimen designed to help them drop some serious pounds, no exercise needed. The catch was that the group's members were to vary their daily caloric intake from 500 (less than half the daily minimum requirement for women recommended by the American College of Sports Medicine) to zero. They were supposed to track their progress, fast to make up for the days they accidentally "overate" and support each other as they worked toward their common goal of radical weight loss.

Pro-anorexia, or "pro-ana," Web sites (with more than one using the "Ana Boot Camp" name) have for years been a controversial Internet fixture, with users sharing extreme diet tips and posting pictures of emaciated girls under headlines such as "thinspiration." But what was unusual about the site mentioned above (which is no longer available) was where it was hosted: the ubiquitous social networking site Facebook.com. The (largely female) users who frequent pro-ana sites have typically done so anonymously, posting under pseudonyms and using pictures of fashion models to represent themselves. Now, as the groups increasingly launch pages on Facebook, linking users' real-life profiles to their eating disorders, the heated conversation around anorexia has become more public. Many pro-ana Facebookers say the groups provide an invaluable support system to help them cope with their disease, but psychologists worry that the growth of such groups could encourage eating disorders in others.

Rose, 17, a Maryland high-school senior who, like several other women interviewed for this story, asked to be identified only by her first name, was active in pro-ana Facebook groups for two years. There, she found a community of people like her—people who had a disease with which few of their friends could identify. "These sites provided a setting where I could talk about the illness without people trying to fix me or tell me that what I'm doing is horrible, disgusting, maladaptive," she says. "For me, part of the illness was just about getting attention. You feel so lonely and you want someone to notice you, and I guess that's kind of the way to do it, even with other sick people."

Many members of the Facebook groups have migrated over from other social networking sites, like MySpace and Xanga. "Facebook's the most personable," Rose says. "If you're on something like MySpace, that's famous for creepy old men. Facebook seems the safest." Kate, a 20-year-old Utah college student, says being able to see people's faces, friends and interests on their Facebook sites makes for a more intimate community. "It's a lot more of a support group for pro-ana," she says. "MySpace was more focused on tips and tricks and when to exercise. [On Facebook], there's a lot of really close networking, so you add those people as friends and exchange phone numbers, and when you're having a hard day, you talk on the phone."

Dr. Steven Crawford, associate director of the Center for Eating Disorders at Sheppard Pratt in Baltimore, sees the openness of the Facebook site as part of its appeal. Increasing numbers of teenage patients at the center are joining Facebook groups that proclaim their disorders to the world, which Crawford believes is a means of adolescent rebellion: "It's almost like putting it in your face: I have an eating disorder. I am anorexic."

Pro-ana group creators insist that they aren't recruiting anorexics and are just supporting each other. In fact, there are some groups that are legitimately focused on recovery. Still, the effects of even such makeshift support groups are likely not as benign as some fans claim. "The more types of these sites that you use, the higher your risk for disordered eating is," says Stanford professor Rebecka Peebles, M.D., acknowledging that that correlation doesn't prove that the sites necessarily contribute to the disorder. A 2006 study that she coauthored found that 96 percent of teens diagnosed with eating disorders who visited pro-eating disorder Web sites learned new dieting and purging techniques, and almost 50 percent of teens who visited sites ostensibly devoted to eating disorder recovery also learned new weight-loss tips.

The openness of Facebook isn't universally appealing—some girls still create fake profiles with names like Skinny Minny and Ana Thin or worry that their friends will notice the groups they've joined—but many users fit the defiant profile Crawford describes. Stef, 19, says her friends have asked why she's joined so many pro-ana groups, but she doesn't care if they're worried; having access to thinspiration, weight-loss tips and fasting partners is more important. "I basically say it's helping me deal with my eating disorder, either for good or for bad, but I know that I'm taking care of it in the best way possible," the Pennsylvania college student says.

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  • Posted By: openmind29 @ 05/07/2009 10:20:49 AM

    speaking as a recovering anorexic and over-exerciser I can say that the Pro-Ana websites are dangerous ground to tread on. Clearly I know first hand that any eating disorder is NOT a choice by any means. However I do believe that at a certain point it is the individuals decision to CHOOSE recovery. Anyone who has tried to recover or is in recovery most likely can relate to having to finally make their own conscious decision that they want to FIGHT for their LIFE against the Eating Disorder.
    I found in treatment that when I engaged with people who did not have the motivation or desire to recovery, it held me back from progressing in my own recovery. It was then that I decided that unfortunately I could not hang out with or engage with people who felt that their eating disorder was "worth it". Sometimes it's hard to tell who is real about recovery and who isn't, but I think that this article is not trying to put down sites that offer help and advice, etc for people who want to recover, but rather speaking out against the sites that ENCOURAGE anorexia and other eating disorders by making it acceptable and making it seem like something more like a hobby or competition, rather than the deathly disease that it actually is.
    My hope is that when people see how much better my life is and how truly happy I am now that I am working through recovery that they will decide to do the same. Until the individual makes that decision for themselves, unfortunately there is not much more that others can do.
    I would love to hear other's opinions on the issue because this is simply drawn from my own experience; I know others may have had different experiences. l

  • Posted By: metamorphosisxx @ 04/27/2009 1:29:02 AM

    I feel like I HAVE to have a say.
    To all the ignorant people who say this (anorexia) is a CHOICE: Would you CHOOSE bi-polar, or CHOOSE depression, or CHOOSE OCD?
    You don't CHOOSE an eating disorder. They creep up on you, slip into you, and mould you so that you fit it.
    You don't have a say.
    Secondly - pro-ana websites. I'm not a member on Facebook (I wouldn't want my business declared there for everyone I know to see!), but I am a member on other sites. Do you know what it's like to come home, feeling terribly low, not knowing why everything seems to be going wrong, not knowing why you're scoring the best at school, working as many hours as possible, being a member of sport teams, community groups, knowing so many people, and yet still feeling so incredily worthless, so lonely, so cold and dark and sad inside? That's how my eating disorder started - whether it was a punishment or a saviour to myself at first, I don't know. But it definitely was part of my perfectionistic nature.
    I didn't discover Pro-Anorexia forums until I did a speech on eating disorders for school. I was incredibly naive, unable to understand why these girls would subject themselves to such torture... until I realised I did the same. I joined a few, so I could comment on what others were saying, to agree or disagree. I met a few people, and we encouraged each other to recover - it kills you to see a friend in pain like that.
    These rooms actually helped fuel my desire to get better.
    Alas, I relapsed, and at the same time, had the 'school anorexic' confide in me she was a member of PA rooms, and she was sick. Very, sick.
    We became friends online as well, and we both encouraged each other to get well.
    Right now, she is three hours away at a hospital trying desperately to recover. She is legally an adult, and no one could force her into treatment. But the people on PA, and I, we made her see recovery was the most desirable option. She couldn't do it by herself.
    PA rooms, just a place to trade tips and thinspo? Hardly. Wannarexic sites do this: they are the attention-seekers, the one who say this IS a lifestyle.
    Well, I'm anorexic, I hardly believe it, and I sure as hell would not be as healthy as I am today if it wasn't for the people who made me realise in this bright, large, scary world, I'm not actually alone.
    Let the pro-anorexic forums stay. Just kick the wannarexics out - they're easy to pick, they're the ones who think choosing to skip dessert or missing breakfast gives them a disorder.
    Sorry for rambling but I really needed to get that out.

  • Posted By: vinze @ 04/22/2009 12:07:57 PM

    i think what you said is exactly spot on, i am doing a awareness poster on eating disorders can i take some quotes from what you just said and reference you? vinzeis@hotmail.com

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