HEALTH

A Vast and Sudden Sadness

Each year thousands of families experience stillbirth. As science seeks causes, parents use photography to honor their babies and cope with their grief.

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  • Posted By: christopherkidwell1 @ 02/01/2009 12:55:31 AM

    With all due respect, why would there be such 'grief' over a stillborn child. If it was my child (and yes, I have had one stillborn from a girlfriend) as an Atheist I would just say "Well..... at least they are on their way to their second chance at life in another body!" and wouldn't have much, if any, grief because of it.
    Then again, I realize that death is a normal part of being human that VERY few people can avoid and that there is no 'heaven' or 'hell' and that after death is just a 180 back into another body in this planet, so I am pretty.... aloof when it comes to death.

    • Posted By: mushapa @ 03/23/2009 10:09:10 PM

      I am an Atheist and so is my wife, I honestly don't believe this happened to you. You sound more like a nihilist than atheist. We lost our son at 6 days from a cord accident and this continued our support for atheism. But we are humans and animals on this planet that grieve over a lose that is genetically embedded in our biology. I think you are not an atheist but just an unsympathetic a-hole. Nor a normal human being, or someone trying to bash atheists. You are missing the point. Its not where he goes, but what he could have been, what he left behind, and what he would have grown up to look like. He is and always will be my son,. I am sorry you lost yours, but the way you speak sounds like he wouldn't have much of a dad anyway.

    • Posted By: mushapa @ 03/23/2009 9:51:30 PM

      I am an Atheist and so is my wife, I honestly don't believe this happened to you. You sound more like a nihilist than atheist. We lost our son at 6 days from a cord accident and this continued our support for atheism. But we are humans and animals on this planet that grieve over a lose that is genetically embedded in our biology. I think you are not an atheist but just an unsympathetic a-hole. Nor a normal human being, or someone trying to bash atheists. You are missing the point. Its not where he goes, but what he could have been, what he left behind, and what he would have grown up to look like. He is and always will be my son,. I am sorry you lost yours, but the way you speak sounds like he wouldn't have much of a dad anyway.

    • Posted By: mushapa @ 03/23/2009 9:50:09 PM

      I am an Atheist and so is my wife, I honestly don't believe this happened to you. You sound more like a nihilist than atheist. We lost our son at 6 days from a cord accident and this continued our support for atheism. But we are humans and animals on this planet that grieve over a lose that is genetically embedded in our biology. I think you are not an atheist but just an unsympathetic a-hole. Nor a normal human being, or someone trying to bash atheists. You are missing the point. Its not where he goes, but what he could have been, what he left behind, and what he would have grown up to look like. He is and always will be my son,. I am sorry you lost yours, but the way you speak sounds like he wouldn't have much of a dad anyway.

    • Posted By: mushapa @ 03/23/2009 9:49:18 PM

      I am an Atheist and so is my wife, I honestly don't believe this happened to you. You sound more like a nihilist than atheist. We lost our son at 6 days from a cord accident and this continued our support for atheism. But we are humans and animals on this planet that grieve over a lose that is genetically embedded in our biology. I think you are not an atheist but just an unsympathetic a-hole. Nor a normal human being, or someone trying to bash atheists. You are missing the point. Its not where he goes, but what he could have been, what he left behind, and what he would have grown up to look like. He is and always will be my son,. I am sorry you lost yours, but the way you speak sounds like he wouldn't have much of a dad anyway.

    • Posted By: YvetteDiericx @ 02/12/2009 2:43:39 PM

      You should keep your pathetic opinions and twisted observations to yourself. How dare you post such cold comments.

    • Posted By: heilan45 @ 02/03/2009 6:25:37 PM

      You are very obviously, either very young man or ignorant. Regardless of whether you believe in god or not. Has nothing to do with it. You are not a woman, and cannot fathom what it is to loose a part of yourself. When a baby grows inside a womb, it becomes a part of your being. AS a mom there begins a joining of two souls. You talk as if you can have another baby and did not treasure the one that was lost. Children are not a like a toy you can just replace when it is lost. It was a part of you! Think of it this way if you lost someone you love most and how much that would hurt.

    • Posted By: hmmmph @ 02/03/2009 2:33:03 PM

      How to explain...when i found out i was pregnant the first time, the greatest thing i felt was my baby moving and to be in awe that there was this tiny potential that would become. The sense of loss of giving birth but knowing that this baby will grow up and realize this potential takes my breath away. Imagine that potential being squelched w/o being given a chance. That is the most devastating thing I could ever imagine. Now if I may, i think i need to replenish my tissue supply from this very touching article.

    • Posted By: LorenC @ 02/02/2009 1:19:45 AM

      Mr. Kidwell,
      If you or I had carried a child for 9 months, anticipating the birth of a new son or daughter, only to lose it, I think we would understand a little better. I have never been there either, but can in a very limited way, understand the deep grief that comes from losing a child.

    • Posted By: mommy23babies @ 02/01/2009 10:41:11 AM

      I have had a stillborn son, and it was and is the hardest thing I have had to go through in my life. For you to say such cold things about such precious life like its no big deal because we are all recycled is really sad. We all believe different things, I believe I will be with my son again in heaven. You may think there isn't a heaven or hell, but that should have nothing to do with grieving your child. If your always looking forward to "Your next life" what is there to be excited about and cherish in "this life" "this body" makes life seem so worthless.. and it isn't. Life is precious, that is why most people like myself, grieve so deeply and have such a hard time dealing with the death our children.

  • Posted By: est1966 @ 02/09/2009 11:31:56 AM

    :( where do I sign up? I'm in Cabot, Arkansas, ready to go shoot.

    • Posted By: Heidic @ 03/11/2009 5:10:30 PM

      Bless you for your offer to do something so meaningful, and incredibly selfless. You can apply to photograph for NILMDTS at http://www.nowilaymedowntosleep.org/photographers/.

  • Posted By: sfnani @ 03/05/2009 3:00:12 AM

    My son, Liam Andrew, was stillborn on May 11, 1995 after a textbook perfect, full-term pregnancy. While there is truth to the cliche that "time heals," all the memories and the devastating pain of his loss just came flooding back as I read this beautiful article and all the heartfelt sharing in the comments. This was my only pregnancy, so my grief was intensified as the years went by without getting a "second chance." As painful as it all was, I wouldn't have given up those nine months of pregnancy for anything. And although we never saw his eyes open or his smile, he still touched many, many hearts...the church was filled to overflowing for his memorial. Three older women were moved to share their stillbirth experiences; they found healing and peace as they were able to finally say good-bye to their babies through Liam's service. Most important of all was how this most difficult experience of my entire life strengthened my faith--sure I was angry with God, but I soon realized I had a choice: I could turn my back on everything I believed in or I could decide that, even if I couldn't see it or believe it, God's love for me and my baby had never faltered...and that there was still a loving, omnipresent power present and active in my life. I don't know how people with no faith survive losses of this magnitude. Thank you again to Newsweek for this article and to this forum for the chance to share my thoughts. Many blessings to you all.

  • Posted By: birdiebunnymama @ 03/02/2009 10:58:26 PM

    I also should add that we were blessed to welcome a NILMDTS photographer into our life, to photograph our daughter and the 3 of us as a family. We CHERISH these photographs, these images were so important in our grieving. They still are 2 years later. Encourage families and hospitals to learn about this resource, as it proves so important for so many. We should not turn our faces and hide from these kinds of deaths, but remember and hold dear our precious sweet angels.

  • Posted By: birdiebunnymama @ 03/02/2009 10:48:38 PM

    thank you for this article.
    it is writings like this that help break the silence.
    our daughter, Birdie Amiina Ruby was born still and silent March 3, 2007

    http://erinnewmanlong.blogspot.com

  • Posted By: amyabbey @ 02/22/2009 4:34:43 PM

    A very positive and timely article.
    Amy L. Abbey, Editor
    Journeys: Stories of Pregnancy After Loss
    WovenWord Press 2006
    www.PregnancyJourneysAfterLoss.com

  • Posted By: pendermood @ 02/10/2009 4:43:10 PM

    I too have suffered the loss of a stillborn. My son was born still at 36 weeks May 2, 2006. I still remember every detail of that horrific day at the doctors office when they told me he had no heartbeat and my labor and delivery of my sweet little silent angel. I wish I had known about NILMDTS then. I have since tried to get NILMDTS and some photographers to participate in my area, but have been unsuccessful. However, I am still trying. Thank you for this wonderful article to bring much needed awareness to Americans about stillbirth!

    • Posted By: eileen.reichler @ 02/13/2009 11:44:43 AM

      Pendermood, what area are you located in? Maybe the members of the LLOST Foundation (www.LLOST.org) can help get something going in your area.

  • Posted By: northshoregrandma @ 02/03/2009 3:10:09 PM

    Hi everyone, My thoughts are with all of you. I was wondering if you could give me some assistance. My neighbors just lost their baby at 29 weeks, they think it was caused by the cord. I know all the things like quiet support, food, etc. (I had a sister die at age two and my mother has shared things that were helpful to them.) But, do all of you that have gone thru losing a baby in this way have any thing that was special and helpful that you really appreciated? Thanks so much

    • Posted By: YvetteDiericx @ 02/12/2009 2:40:11 PM

      Call their child by his/her name. Make a point of callng or talking to them each month on the date of their precious babies birth, espeically for the first year. Mark the baby's birthday on your calendar. Just don't forget about their child and that they will NEVER forget.

    • Posted By: pmciufo @ 02/03/2009 6:36:43 PM

      Call on them in a few months when others have settled back into their normal routine. It will be welcomed and needed. Remember them on Mother's Day & Father's Day. Remember them a year from now. Speak their child's name.

    • Posted By: pmciufo @ 02/03/2009 6:36:08 PM

      Call on them in a few months when others have settled back into their normal routine. It will be welcomed and needed. Remember them on Mother's Day & Father's Day. Remember them a year from now. Speak their child's name.

    • Posted By: heilan45 @ 02/03/2009 5:56:50 PM

      The best advice anybody can give you. Your acknowlegement of giving food, a loving touch, a friend to talk to for support. This is a time of grief, it has its own time, just like any loss. Follow your heart. But, don't push them, let them grieve. IF it is a couple of months from now, it is still okay. Remember when one door closes god always opens up another. God never gives us more than we can handle. There is always a purpose for everything. Showing you care by any gesture is the best that anybody can do.. Let them dictate how they want to be treated, and respect their wishes.....

  • Posted By: YvetteDiericx @ 02/12/2009 2:34:16 PM

    I cried the enitre time while reading A Vast and Sudden Sadness and applaud Newsweek for taking on the subject of stiillbirth. Too little is ever mentioned of this horribly devastating loss and too many people have no knowledge of how often it occurs. My beautiful son Kyle was born October 5th, 2006. Just 9 days before his due date, I went into labor at home. After laboring at home for 4 hours (he was my third child), my husband and I headed to the hospital. 15 minutes later, after being hooked up to the fetal monitor, we found he had no hearbeat. I had him an hour and fifteen minutes later. My world literally stopped - I thought for some time I was having a nightmare. I thank God for the kind nurses who were there, as my doctors had little words of comfort. My nurse encouraged us to take photos and it was the best advice we were given. They hold the only memories we will ever have of him and we hold them so dear. The 5 hours we were able to spend with Kyle - holding him, kissing him, loving him - were far too fleeting. NILMDTS photographers must be commended for taking on this sacred task - giving devastated parents the only thing they will be able to look back at for years to come. The photos I have of Kyle are counted as the most precious possession I have. Again, thank you Newsweek for acknowledging the grief of so many parents who often have a hard time expressing it on their own.

  • Posted By: ELevang @ 02/12/2009 12:09:43 PM

    Thank you Claudia and Newsweek for your story on stillbirth photography. There is no doubt that NILMDTS is providing a service that can profoundly change the experience of grief for families. It is worth noting that photographing babies born still has been occurring in hospitals for more than 20 years thanks to the heart and compassion of bedside nurses. These caring individuals, many seeped in their own grief, intrinsically knew that a permanent record of these babies would be important in the unfolding life of bereaved parents. While these photos may not have been of portrait quality, they nonetheless provided a lasting remembrance that confirmed that this child existed. The actions of these bedside nurses were, and remain, the threads that connect to NILMDTS.

    NILMDTS also has benefited tremendously from the ground-breaking work of Todd Hochberg, the father of bereavement portrait photography. Todd's dedication to bereaved families is witnessed both in his exquisite portraits of babies and in his commitment to training professional caregivers. Todd's work can be seen at www.toddhochberg.com

  • Posted By: eca142 @ 02/10/2009 6:03:54 PM

    A Small Victory (www.asmallvictory.org) works with NILMDTS along with other photographer groups. They provide great packages to babies lost through miscarriage, stillbirth and neonatal death. Really, anyone who has ever lost a baby should check it out. They are national and growing a ton. I wish I knew about them when I lost my baby but now I'm just trying to be involved and spread the word about what they do. It's pretty amazing and really important. Plus, Liz, the woman who runs A Small Victory (www.asmallvictory.org) is really, really nice. Check them out - they are on Facebook and MySpace too.

  • Posted By: pendermood @ 02/10/2009 4:59:41 PM

    I just wanted to add to my previous comment....Since the loss of my first born son (born still) in 2006, I have had 2 "successful" pregnancies and have a handsome and healthy son and a beautiful and healthy daughter. To all of those reading this who have lost a child recently---there is HOPE. You just have to have faith and the courage to get pregnant again. God bless!

  • Posted By: sopranolindsey @ 02/02/2009 3:40:03 PM

    I lost my firstborn son when he was a month old. He had a severe congenital heart defect and never came home from the hospital. I later found out that there was this service available, but it was never offered to us at the time. We have snapshots of him covered in tubes and wires, but no pictures of him without them and nothing professional. I would give almost anything to have had the chance to have a NILMDTS photographer available the day my son died.

    To those of you who volunteer with this organization, bless you. You are giving a precious gift.

    • Posted By: Kailen's mommy @ 02/10/2009 4:13:14 PM

      I'm so sorry for the loss of your precious son. I lost a daughter to stillbirth just 2 years ago this week and I also was unaware of the servics of NILMDTS. I did however find a wonderful sight that would take photographs of your baby and retouch them the way you would like to see, with out tubes and hospital backround they are http://www.babyangelpics.com/index.php I hope that helps you. God Bless~Danielle

  • Posted By: barbara mackay @ 02/09/2009 6:27:40 PM

    I lost five babies at various points in the pregnancy....and i can attest that it really doesn't matter when the death occurs; the grief of losing a child is still devastating.
    Even though I did happily go on to have successful, healthy births, I will still never forget the little ones that I might have had. I am very glad to read that the medical profession has finally awakened to the fact that a person has died, and not just a "piece of necrotic tissue", as one physician I was subjected to at the loss of my first child, apporpriately named Dr. Payne, put it. So much additional and needless misery has been inflicted to parents already reeling with grief....I am very glad to hear that something is finally being done to lessen this, the deepest sorrow, as much as possible.

  • Posted By: est1966 @ 02/09/2009 11:33:08 AM

    This article has touched me so much. I have a great camera, although I'm not a professional, I'm going to call our local hospitals and ask if they need anyone to do this, to call me.

  • Posted By: avaangelfish @ 02/08/2009 7:32:35 PM

    I am so truly thankful and applaud the writer of this article.. we lost our 3rd daughter Ava Madison at 38 weeks pregnancy and did not find out til I was fully dialated and ready to push on April 20th 2008..It has been the worst time in our lives and I can so relate to this article and cried the entire time while reading it..not only for my own pain , but for the pain of every person in the article and every family that has ever lost their child...I myself have tried to promote awareness and support to as many people as possible..We did not have professional pictures..nobody offered that to us, unfortunately..but the pictures that we do have, are our most cherished possessions!! Thank you to all the photographers and medical staff that help us parents in our biggest time of need! To all of you that read this that have lost your baby..I pray for you everyday and ask God to give you strength and courage..to anyone reading this that knows someone in these shoes..please support them , talk about their child...remember their child as time goes on..and Please let them grieve and don"t expect them to be over it anytime soon..we as parents will never GET OVER losing our child! we will learn to live without them because we have no other choice, but we are forever changed!! If we don go on to have children that we can bring home, please don't think that we are all better because now we have a baby.. another child will not ever replace our child that died..My daughter Ava has made an impact in this world, even though hardly anyone ever met her face to face..I for one am a better person ...I carried her every second of her life.....WE love you and miss you more than words could ever possibly express..

  • Posted By: TLCoggan @ 02/06/2009 2:47:14 PM

    I am the aunt to a baby boy who was born still September 26th, 2003. Riley was perfect aside from the tragic accident that took his life before the opportunity to take his first breath. My being Riley's aunt is complicated by the fact that I was to adopt him. I never knew the meaning of love until I had the opportunity to hold Riley within my arms, so perfect and still. Knowing Riley changed my life and outlook on the world. My greatest hurdle by far has been finding support that addresses my unique situation, in most support situations I am welcomed and acknowledged as the aunt to a baby who was born still, when I mention that I was to adopt this same child the warm embrace that I was accepted into the circle of support melts away and I am confronted with silence, the same silence which confronted be during Riley's birth. I have not allowed this lack of understanding deter me from continuing to raise awareness. Since Riley's passing I have made great strides in changing the way in which Canadians confront stillbirth. I spearheaded the October 15th Pregnancy and Infant Loss Remembrance Day effort for Canada. I successfully lobbied my home province of New Brunswick to declare October 15th, Pregnancy and Infant Loss Remembrance Day. I am now leading the effort of the CFO also known as the Canadian Foundation for October 15th http://apps.facebook.com/causes/132352?m=de0957a2. in its efforts to recognize Pregnancy and Infant Loss Remembrance Day across Canada. Thank you Newsweek for shedding light on an often taboo subject matter. Terra-Lynn Coggan postmaster@forthe

    • Posted By: SEHF @ 02/07/2009 9:18:27 AM

      You are Riley's mother. Remember that always. Even if the adoption was never finalized, in your heart you are his mother. It is love that is the connection - as wife and sister-in-law of two adopted "boys", and a mother, I see everyday that the love, not the birthing experience, is the key to family. While you may not get the support from others you need, please search it out for yourself. You have suffered a profound loss and it sounds like you are doing all you can to honor it. My prayers are with you and Riley.

      • Posted By: eileen.reichler @ 02/08/2009 4:11:36 PM

        I agree - it is the love that counts. There are definitely those who are willing to share your pain. Although your situation might be different than others, it doesn't matter. We all grieve our losses, no matter what that loss is and no matter how that loss came about. Please allow us with the LLOST Foundation to provide support to you and your family through an active forum. The members of LLOST have come to realize through our devastating losses that our purpose in life is to provide support for today and offer hope for tomorrow. You are not alone. Always remember that. We can't say we know exactly how you feel, but we definitely know the pain of grief. Our website is www.LLOST.org. We will be there for you, as others have been for us. Eileen

  • Posted By: rklimbo @ 02/07/2009 5:10:26 PM

    I applaud Newsweek for a brilliant story about the devastating impact of stillbirth. Having worked in the area of perinatal bereavement for most of my career, I know how important it is for parents when the depth of their grief is acknowledged and understood. Perinatal bereavement photography is a crucial part of caring for families when their baby dies. Now I Lay Me Down to Sleep has brought a new level of skill and artistry to families, as many of these postings will attest.

    I have been a part of Resolve Through Sharing since the early 80s. We are the model for a hospital-based perinatal bereavement program. Over 30,000 health care providers have taken our trainings. I want to acknowledge the nurses, chaplains, social workers, physicians and many other disciplines who work, often behind the scenes, to care for families when their baby dies. They bear witness to a family???s suffering and suffer themselves. An article such as this reminds them of the value of what they do and the difference they make.

    Rana Limbo, PhD, RN
    www.bereavementservices.org

  • Posted By: rklimbo @ 02/07/2009 5:08:09 PM

    I applaud Newsweek for a brilliant story about the devastating impact of stillbirth. Having worked in the area of perinatal bereavement for most of my career, I know how important it is for parents when the depth of their grief is acknowledged and understood. Perinatal bereavement photography is a crucial part of caring for families when their baby dies. Now I Lay Me Down to Sleep has brought a new level of skill and artistry to families, as many of these postings will attest.

    I have been a part of Resolve Through Sharing since the early 80s. We are the model for a hospital-based perinatal bereavement program. Over 30,000 health care providers have taken our trainings. I want to acknowledge the nurses, chaplains, social workers, physicians and many other disciplines who work, often behind the scenes, to care for families when their baby dies. They bear witness to a family???s suffering and suffer themselves. An article such as this reminds them of the value of what they do and the difference they make.

    Rana Limbo, PhD, RN
    www.bereavementservices.org

  • Posted By: rklimbo @ 02/07/2009 5:07:08 PM

    I applaud Newsweek for a brilliant story about the devastating impact of stillbirth. Having worked in the area of perinatal bereavement for most of my career, I know how important it is for parents when the depth of their grief is acknowledged and understood. Perinatal bereavement photography is a crucial part of caring for families when their baby dies. Now I Lay Me Down to Sleep has brought a new level of skill and artistry to families, as many of these postings will attest.

    I have been a part of Resolve Through Sharing since the early 80s. We are the model for a hospital-based perinatal bereavement program. Over 30,000 health care providers have taken our trainings. I want to acknowledge the nurses, chaplains, social workers, physicians and many other disciplines who work, often behind the scenes, to care for families when their baby dies. They bear witness to a family???s suffering and suffer themselves. An article such as this reminds them of the value of what they do and the difference they make.

    Rana Limbo, PhD, RN
    www.bereavementservices.org

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