Comment: just over a week a go, my brother was diagnosed with MCL. Hopefullly he will begin his treatments soon. We feel overwhelmed with the technical and cryptic medicalese which well-meaning physicians use and I immediately googled anything I could find on MCL...a very depressing endeavour. Until I found your article and felt hope and a clearer understanding of this disease. Thank you. God bless you and your family and my brother.
Comment: A word of caution about your children's reactions. Don't let their silence fool you. Adolescence is absolutely the worst time to face a parent's mortality. I lost my father to cancer when I was twelve, and believe me, it had a lifelong effect. Of course I didn't talk about it to anyone - my mother and sisters were so overwhelmed that I couldn't add my pain to their burdens. So I soldiered on, helping my mother care for my father, and not making a fuss despite my own turmoil and pain.
Of course your children aren't going to talk to you - they don't want to increase your burden. But make sure they have someone else to talk to, where they can let out what they feel without feeling guilty about it. Otherwise that "adolescent indifference" may turn out to have been something entirely different.
Comment: Your story sounds very similar to my own. I felt that I could really connect with so many things you experienced. My diagnosis of MCL was confirmed several weeks ago. I begin R-CHOP next week at Memorial Sloan-Kettering. Since it seems you live in the NYC area, perhaps we can connect in person at some point?
Comment: I was diagnosed just last week with what they say looks like Mantel Cell. The exact type is still unknown. The doctor actually told me to check out Mantle Cell on the internet without giving me any information. I was blown away. Your article was the first I read that inspired me. It has given me hope and determination. I go to the University of Virginia for a second opinion later this month, after all the other tests have been completed. I am 53 years old and was having few symptoms other than a sinus infection and a swollen lymph node in my neck that would not go away. So the diagnosis was not at all what I was expecting.
Comment: My brother just diagnosed 4/11/08. I hit the internet and found the MCLConsortium. Thank God. The information and diagnosis took me to a point where I can't breathe. He is 54, healthy and funny and in a quiet funk. Some friends know, the others will be brought in after the UCLA second opinon. I am searching constantly for the special Dr. that "connects". Your story helps with the reality, unfortunately not the gripping pain. HOWEVER...this is just today. Tomorrow I'm back on it. God bless over you and your family.
Comment: thank you for sharing your inspirational story. my significant other was dx sith mcl 6 mos ago went through chemo, into remission for one month and it is back next step is stem cell tx.
Enter comments if any for reporting abuse
STRATEGIES Isn't it ironic: Xerox is hoping it can profit by teaching companies how to reduce their printing.
Sponsored by
|
Sponsored by
|
Loading Menu
