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My Life with Cancer

 

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The climax of my treatment was a bone-marrow transplant in August of 2004. There are two kinds: an allogenic transplant—the only true cure—involves a donor. But I had no sibling match, and using an unrelated donor carries a one-third morbidity rate. Because the earlier rounds of chemo had achieved remission, I was eligible for a less dangerous autologous transplant. I was hooked up to a machine that extracted (or "harvested") millions of my stem cells, which were then frozen. Once admitted to Sloan-Kettering for a 23-day stay, I was hit with high-dose chemotherapy, the most toxic in the chemo family. The point was to knock my white blood cell count down to zero, a process that confined me to my room for two weeks. Had I, with no immune system, wandered into the hall and caught something, I would have died. After my stem cells were defrosted and transplanted back into me, along with several other blood transfusions, my blood counts slowly increased.

For me, the experience was not as bad as advertised. Before I felt the brunt of it, I even managed to bang out a NEWSWEEK column from the hospital. I avoided the horrible mouth sores and most of the other common side effects. Family and friends visited every day, as long as they washed their hands carefully and stayed on the other side of the room. Even when I was too weak to move or say much, I enjoyed their chatter. When I got home I could walk only a few steps. But within a few weeks I was walking a mile and by Election Night 2004 I was back on TV after eight months, balder if not wiser.

During my annus horribilis, NEWSWEEK let me work at home and helped me navigate the insanity of the American health-care system. The claims forms are impenetrable and accompanied by pseudo-sympathetic bill collectors. How do other patients with life-threatening illnesses even begin to handle it? Cancer is seriously expensive, and no insurance company covers all of it. I met a lymphoma survivor whose wife left him after he sold the house to pay for his transplant. Now he's clinically depressed, too. But at least he's not uninsured or bankrupt. The majority of personal bankruptcies in the United States come from medical expenses, not sloth. In its hideous 2005 bankruptcy "reform," Congress sided with credit-card companies and kicked cancer survivors when they were down.

Six weeks after my transplant—and again at six months—I received additional infusions of Rituxan, one of the new, less toxic and more targeted cancer therapies. In the two years since, my checkups have consisted of colonoscopies (I've had eight altogether) and CT scans. Recently I graduated from three-month scans to six-month scans. I grow anxious before each one, of course, terrified that I will be exiled once more to the penal colony of the sick.

In between, every little ache or pain sends a jolt of dread. But I run three miles a day to stay in shape and I try to channel some of what my father has taught me about being a combat aviator in World War II, where he learned to balance fear and fatalism. At home, my children seem unaffected, insulated by the glorious narcissism of adolescence. I can even envision a time when a day finally passes without my thinking of cancer.

Serious illness has a way of crystallizing life, which is why so many people change jobs or spouses or views of the world when they fall ill. On some level, they weren't at peace with their old life and suddenly found the motivation to change it. I was happy with my old life, and all I wanted was to get it back, without having to become a professional cancer survivor or expert on coping.

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Member Comments

  • Posted By: sharonstock @ 11/22/2009 6:33:18 AM

    Excellent story Jonathan. I watched you on MSNBC throughout the presidential election cycle and had no idea about your cancer history. I was diagnosed with a rare form of ovarian cancer six years ago and as a journalist, I responded with the same research and analytical approach once I was in remission. Before that, I was too sick to be Lois Lane. Thanks for sharing your journey. By the way, I had the same type of cancer Lance Armstrong had -- choriocarcinoma -- only mine originated from my ovaries, not testicles (of course).

  • Posted By: RobertSC2008 @ 11/12/2008 3:30:56 PM

    just over a week a go, my brother was diagnosed with MCL. Hopefullly he will begin his treatments soon. We feel overwhelmed with the technical and cryptic medicalese which well-meaning physicians use and I immediately googled anything I could find on MCL...a very depressing endeavour. Until I found your article and felt hope and a clearer understanding of this disease. Thank you. God bless you and your family and my brother.

  • Posted By: heckertr @ 08/13/2008 9:53:31 PM

    A word of caution about your children's reactions. Don't let their silence fool you. Adolescence is absolutely the worst time to face a parent's mortality. I lost my father to cancer when I was twelve, and believe me, it had a lifelong effect. Of course I didn't talk about it to anyone - my mother and sisters were so overwhelmed that I couldn't add my pain to their burdens. So I soldiered on, helping my mother care for my father, and not making a fuss despite my own turmoil and pain.
    Of course your children aren't going to talk to you - they don't want to increase your burden. But make sure they have someone else to talk to, where they can let out what they feel without feeling guilty about it. Otherwise that "adolescent indifference" may turn out to have been something entirely different.

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