I am a teacher in West Virginia and have PEIA insurance, yes having insurance is great and I am lucking that most of my costs have been covered. But after the treatment I received in West Virginia, my wife and I decided that it would be to our benefit to go to West Penn Hospital in Pittsburgh. The doctors in Pittsburgh have extensive backgroung dealing with Multple Myelomia and the best treatment options. Well, my insurance company want to charge me $10,000.00 because I am going out of their loop and attempting to get the best treatmenta available. So, eventhough you have insurance coverage you don't always get the opurtunity for the best care. Of cource I'll find a way to be able to pay the extra penalty.
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How to Mend a Sick System
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Don't get me wrong. It's not that I feel guilty about living. But it's unconscionable that we have a health-care system where people are denied the treatment they need because they can't afford it. I've talked to Sens. Ted Kennedy and Hillary Clinton, House Majority Leader Steny Hoyer (they're my friends and really concerned about this issue) and anyone else who will listen about how we can fix the problem. It's not an easy thing to do. Senator Kennedy told me that last year he'd invited some pharmaceutical companies to discuss voluntary solutions to the problem of soaring drug costs. Only half showed up. "They're not interested," he told me. "No, it's not that they're not interested," I said, "it's that they're getting away with it." It amazes me that in Italy, you can buy drugs for a fraction of what they cost here. Why? Because Italy and many other countries regulate the price of drugs. Yet here in the United States, consumers and insurers are subsidizing those cheap drugs by paying high prices to the pharmaceutical companies. That's not fair.
Yes, I understand that research is expensive. But most of it is being done, at least for multiple myeloma, by incredible doctors, like Ken Anderson and his team at Dana-Farber Cancer Institute, who get dribs and drabs in grants out of the $250 million authorized by Congress during those 2001 hearings. I'm glad the drug companies are making a profit. That's the American way. But I do want them to understand that the way they are doing it is killing our health-care system, and lots of Americans are dying prematurely and unnecessarily.
If there's one thing I'd like to be able to do as a result of my having cancer, it's to use it as a springboard to help fix our health-care system. I don't have an answer for how to achieve that goal. But I do know that unless we talk openly about the ailment, we will never find a remedy. If my disease has taught me anything, it's that the price of silence is too high.
© 2007
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