Courtesy Bebe Bahnsen
'Dying seemed to be the only answer'
MY TURN

The Demon in My Head

Years of crushing depression left me contemplating suicide. Then a surprising diagnosis saved my life.

 

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Like many others, I have battled depression throughout my life. A combination of psychotherapy and antidepressants had been enough to keep me living a relatively normal and contented life—until about 10 years ago. Then I became increasingly unhappy, and no amount of drugs or therapy seemed to help. In 2002, the depression became so severe that I experienced my first strong suicidal urge. On the recommendation of my psychiatrist, I was hospitalized.

The psychiatrist was so concerned about my condition that he wanted an MRI done to ensure that nothing was wrong with my brain. The neurologist who ordered the MRI found something surprising: a meningioma, a type of brain tumor that is generally benign. I was horrified. But the neurologist wasn't. He assured me that the growth was benign, and too small to be concerned about. He said that meningiomas were often discovered during autopsies, but had caused no problems for the people who had them. Moreover, he insisted that the tumor had nothing to do with my depression, and he relayed that conclusion to my psychiatrist. His advice was essentially to leave it alone for the time being but to let him know if I began to experience headaches or seizures, a sign that the tumor was growing.

The psychiatrist released me from the hospital on the condition that I go live with my son in Arizona. But I became even more depressed there and, after a few months, I returned to my home state of Georgia, where I lived mostly with friends. Still, I could not shake the depression. It was so bad that I could not work. I am a writer, but I found I could no longer write. Some days the depression was so profound that I could hardly get out of bed. My friends and family were deeply concerned about my condition, but we all believed that my depression had simply gotten out of control. I continued to take my antidepressants and to go to therapy, but they had little effect. I made two serious suicide attempts and was hospitalized each time. Dying seemed to be the only answer, and I could not understand why people who loved me objected to my desire to end my life.

I was getting sicker and sicker. In the summer of 2006, I moved to Las Vegas to live with my other son, hoping it might help. But I soon made another suicide attempt and began a series of psychiatric hospitalizations in that city. Over a few weeks, my symptoms deepened. I could not walk straight and my thinking became blurry. In fact, my memory was so foggy that I completely forgot that I had a brain tumor. (And anyway, I had been convinced by what the neurologist had told me four years earlier: that the tumor was nothing more than a small, insignificant growth.)

By late November, I could say only a few words, none of which made sense. I could not stand up. Sometimes I did not remember my own name. I knew I was dying, but I did not care.
Finally, the psychiatrist I had been seeing in Las Vegas consulted a neurologist, telling him, "I think she's demented." That neurologist  saved my life. He told the psychiatrist that I needed immediate medical care. I do not remember that doctor's visit, but I do remember being put in a wheelchair and rolled across the psychiatric hospital's parking lot. There I was lifted into a mobile imaging truck where I had another MRI.

That test revealed a brain tumor that was large enough to be fatal. It had grown from approximately one centimeter in size, when it was first diagnosed, to six centimeters. I was immediately transferred to a primary-care hospital where, on Dec. 4, the tumor was removed in an emergency operation. I awoke with almost no hair, a monstrously swollen head, and a nine-inch incision across the left side of my scalp held together by staples.

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Member Comments

  • Posted By: starfare @ 10/20/2009 1:29:50 AM

    I am recovering from brain surgery...four years ago I was told the same thing, "too small, people die with these and never know they had them"....after a one year follow up I 'forgot" I had a tumor..it was benign, it didn't matter. After months of headaches and nausea, I had another MRI and was told my tumor had doubled in size and was growing toward the main vein/sinus. Surgery saved my life and I too am haunted by the number of people suffering due to the minimizing physicians, who are not neurosurgeons, do and never follow up.

  • Posted By: sarad @ 12/14/2007 12:36:33 AM

    Wonderful article. The common theme to most meningioma patients is the delay in diagnosis, yet the medical community refuses to recognize its own deficiency in this area, that is, neurological assessment. In addition, the medical field discounts the human psyche regardless. Most doctors spend so little time with patients they do not recognize the early changes in their patient's personality, mental acuity, gait, etc. They are not taught to interview a patient properly in medical school. Most patients are diagnosed with large tumors after they have become terribly symptomatic. The medical community then exonerates itself with catch phrases such as, "it is a slow growing tumor." After my physician watched me decline over a year, withdrawing me from work and sitting by as I became incoherent, telling me I was depressed, I ultimately presented to an ER with a massive meningioma, brain herniation, and massive cerebral edema several hours after leaving her office. Once I recovered, which really was a miracle, I filed a complaint with my state's medical regulatory board. They ultimately found her care met the standards!! I was outraged. I have since contacted several legislators and hope to bring our state medical regulatory board under scrutiny. My goal is not punitive, it is to recognize the need for remedial education of community physicians. If we allow them to sweep these cases under the rug, the next meningioma or brain tumor patient will not fare any better. I encourage everyone to contact their district senators and congressmen and woman as well as the Department of Health Medical Regulatory Boards to tell them your story. If you want to know where your state falls in assessed leniency for physician reprimand or remedial education google Public Citizen Congressional Watch. This is a Ralph Nader watch group that amongst many interests compiles data on medical regulatory boards. I believe the time has come that meningioma patients demand more research and to help the next meningiopma patient by forcing the medical community to acknowledge it has a deficiency in diagnosing this condition. We can not be quiet about this. Hats off to Newsweek.

  • Posted By: matthewtwit @ 12/09/2007 10:00:39 PM

    I was diagnosed with anxiety and depression for over a year before my brain tumors were found, Now I am celebrating two years of being cancer free.

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