"Even though temperatures have cooled off, it is not unusual to see human EEE cases confirmed in September," Massachusetts Public Health Commissioner Dr. Monica Bharel said in a statement last week.
The inherited disorder, caused by chronic infection with the human papillomavirus (HPV), leads to unusual bark-like growths on the hands and other body parts.
Growing hair is painful and causes blisters on her head.
"Many of the people affected in Western Uganda probably had been suffering silently without help for more than 30 years," an author of the new study said.
Despite regulations meant to speed up research, there is still treatment for only 7 percent of rare diseases.
Gordon Gray is raising funds to help fight a highly uncommon and fatal neurodegenerative condition.